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CyberKnife::Patient Forum

  • By admin
  • December 1, 2016
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Joined: 10/10/2008 Posts: 4304 I don’t know what you mean by margin of error. My story involves lots of kicking and screaming at people who have listening trouble – trying to get them to recognize/acknowledge/take action on my hearing loss. You will read many opinions, thoughts and thought processing in decision making. It took about 3 weeks for it to return to normal. I do not consider myself as a participant in the disability crowd and am embarrassed to consider applying for a disability retirement from my pension board. Others believe radiotherapy is easily the better approach when it is an option. For the past few months I’ve been listening to podcasts while cycling, with an earphone in right ear only, but not too loud, and not for longer than ~30mins at a time; also, giving this habbit up for the past week hasn’t changed my symptoms.

I have no hearing loss.. I don’t know what you mean by “caused by liquor”. An Acoustic Neuroma typically grows on one of the branches of the VIIIth cranial nerve—the nerve that serves as the conduit for information from the ear to support hearing and balance. Nonetheless, I decided to consult with a physician about my problem who found nothing dangerous. Message tinnitus support the bigger and better for tinnitus forum. Less than 1% of treated patients may have trigeminal functional loss, which would cause numbness, not pain. It coiuld also cause some eye problems.

There are all kinds of theories about causes, from severe allergies to an auto-immune deficiency, but they really don’t know with any certainty if there is one primary cause or a group of causes. Assuming I thought there was any legitimacy at all to homeopathy, beyond the placebo effect. It usually goes away by two years, but not always. I went to see my GP who looked in my ear and said it was clear?.. 6. In your experience, do you ever recommend a second round of steroids? I should also mention that I’ve had sinus trouble most of my adult life, especially the kind that gives you toothache in your upper teeth (I think I’ve had unnecessary tooth fillings because I mistook this for a dental problem).

The very rare case of palatal myoclonus manifesting in objective tinnitus was discussed. Part time poster. There’s Kris, the Patient Navigator who is there to walk you through the process. For two years my wife has suffered pain in her upper right cheek that she thought was related to sinus blockages or infections. The audiologist explained that the behind-the-ear piece in the ‘good’ ear is small and won’t affect my normal hearing in that ear, i.e., I won’t feel ‘plugged up’ with a device in my ‘good’ ear. Brain edema would be extremely rare, and only in the very largest tumors. Furthermore, once efficacy is demonstrated, further studies are needed to determine the appropriate length of therapy, the necessity for maintenance therapy, the role of “drug holidays,” appropriate dose tapering schedules, and a more careful delineation of which populations of patients are more likely to respond to alprazolam.

(Although if liquor causes brain edema, it may explain some things to me). As you can imagine from the number that I’ve had, my tests (along with 5 CT scans, also with contrast medium) were because I do have one of the really serious issues with which MRI scans can assist in the diagnosis. This implies the edema needs to be surgically drained after. Does it only happen to large schwannomas? I will be seeing a neurosurgeon soon. Trigeminal neuralgia should not occur from treatment. Less than 1% of treated patients may have trigeminal functional loss, which would cause numbness, not pain.


It coiuld also cause some eye problems. I did not feel love for my son anymore…..nothing mathered and everything was doom. They used to do like this for years in Italy, but it seems they’re administering it only when really needed now. Joined: 2/12/2010 Posts: 5 Thank you Phyllis, Your website looks terrific and I’m sorry I don’t speak Italian to participate. I would also experiment with playing the same level of your T to yourself and playing with the pitch and loudness as I mentioned in my previous post. Tinnitus tinnitus and support forum diltiazem Talk. Even with all of these associated conditions and causes, some people develop tinnitus for no obvious reason.

During each visit the patients repeated the initial questionnaires. This study was not a double-blind, placebo controlled trial. Many of you have been through various trial and error techniques to figure out what works best for you. Joined: 10/10/2008 Posts: 4304 Hasegawa T, Fujitani S, Katsumata S, et al. Stereotactic radiosurgery for vestibular schwannomas: analysis of 317 patients followed more than 5 years. Neurosurgery. Aug 2005;57(2):257-65; discussion 257-65.

However, I have to think they wer doing something wrong since this has not been reported elsewhere to my knowledge. Certainly the large series atPittsburgh did not report this. Joined: 8/15/2011 Posts: 2 Thank you Dr. That is why I asked about the tumor size. The study you cited was very helpful and was a springboard for locating other studies. My previous searches didn’t easily reveal these types of databases. I did find other instances reported of hydrocephalus developing after gamma knife.

A rare occurrence after gamma, but it was noted in a number of studies. After tinnitus that would last only for a few months that has not started a deep pain in my ear I have. Anyway, I’ve been reading a lot of people’s posts on the forum and I just wanted to share my story. communicating (including the study you referred me to above – doesn’t indicate the type of hydrocephalus). They are not only known Addionally mandatory tend to be appointed in use. Communicating Hydro (the type I have) was also specifically noted on some of the studies after gamma knife, but conclusions as to why it occurred are varied. Some indicate it may have happened with or without radiation, because communicating hydrocephalus sometimes happens with larger tumors – some say possibly protein related.

Another suggested it may have to do with something that occurs during the necrosis process. Basically they’re inconclusive but very interesting theories were presented which I will follow over the years. Also, I couldn’t find any studies documenting occurrence of hydrocephalus after Cyberknife (which is the procedure I had). Since Cyberknife is so much newer than gamma knife, obviously there are fewer studies. Also, if my post radiosurgery communicating hydro is rare, there may not be a correlation made or looked for in current studies. Should my condition post radiosurgery be documented somewhere, so that if a trend exists (and its not just a fluke), it can be tracked, documented and perhaps someday if true, communicated to doctors and patients as a rare, but possible side effect? I know that would take years, but the data has to start somewhere.

Regardless, I still would have chosen Cyberknife over Microsurgery because the risk for radiosurgery side effects (even hydrocephalus, if that is in fact a risk due to radiosurgery) is so much lower than the risks for traditional surgery. However, I had my MRI today and had stop the study. The hydrocephalus is/was a “pain in the ***” to deal with, but I believe still a relatively minor condition compared to what I could have been faced with (complete hearing loss on right side, facial paralysis, csf leak, brain bleed, even death, you know them all). If you have any interest, I’d be happy to send you links to the additional studies I found. You have been so helpful and I really appreciate you getting back with me so quickly and honestly. Neurotology findings in patients with diagnosis of vascular loop of cranial nerves VIII in magnetic resonance imaging. Have a great day!!!

Joined: 10/10/2008 Posts: 4304 I knew there were other reports, but this space and my time are both limited. But the point was that hydrocephalus does occur, but it is rare except in the series I reported.

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CyberKnife::Patient Forum

  • By admin
  • November 6, 2016
  • Comments Off on CyberKnife::Patient Forum

Thank you for answering my previous question. This could be, for example, test and scan results, x-rays or letters to and from NHS staff. I also have had trouble with my hearing that is now noticeable. I was told .That while the radiation is killing the tumor. The intensity of the vertigo often corresponds with the degree of hearing loss. A real helpful guy. At one point my doctor thought I might have Lyme disease.

Again, I will try to let some more time pass and keep monitoring the lymph node and get a second opinion if it gets larger. Don’t even mention to the new doctor that you are suffering from depression; you might do that later and explain why you withheld that info, but don’t mention it at the start, and don’t have records forwarded from your previous doctor until later if you can avoid it. You might also take a look at the piece I wrote on Barriers to Habituation. Has anyone here suffered from an acoustic injury, got hyperacusis and recovered from it eventually? I think you should talk to the doctor again. If you misunderstood, then he should get an opportunity to better explain himself. VN is a whole different ballgame from BPPV.

My name is sunmi.i`m glad to meet you in here.These days,i often play CSGO game with my younger brother and my friends.For CSGO GAME,i think it is a best game for me.I like it a lot. Telischi referred me to Dr. I was aware that I could very easily got myself into a lifestyle which avoided going to out to places, getting panicky if a noise went off near me. Because of i like it,so i often buy many things about CSGO products such as skins,keys,pistols.If you like it as same as me.I suggest you that to click at www.csgo4sale.com for these things.It let me feel very well to buy these things.

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CyberKnife::Patient Forum

  • By admin
  • October 30, 2016
  • Comments Off on CyberKnife::Patient Forum

Otolaryngologists (ENT physicians) often advise their tinnitus patients to avoid use of caffeine in order to reduce tinnitus sounds. I I think that is how he said he kept my nerve intact, even though I’m still deaf. My audio-gram revealed a small decrease in my hearing. I had a MRI and was told afterwards ‘nothing is wrong, you don’t have a growth or tumour along your hearing nerve’. I realize that it doesn’t seem easy to break through it, it’s a circle after all, and keeps feeding itself. Do you recommend CK for this? Apr 2010; 31 (3): 492-7.

Speeding up when I’m around white noise especially. Can you tell me something about that, please? Would anyone who has been diagnosed with Meniere’s Disease be interested in posting in this thread? The Eustachian tube is normally in a collapsed state. Although the dizziness brought on by vascular compression of the eighth cranial nerve may mimic symptoms related to other balance disorders, VP and DPV are characterized as their own syndromes. I will keep you all posted as we go further. However, people usually are less bothered by it over time.

My own theory is that they just learn to tune it out. Given that tinnitus is often generated in the brain, it is possible that stress puts the brain on alert and leads it to begin reacting to ear damage which it had previously ignores; it is possible that stress allows the detection of a tinnitus signal which has in fact been present on a chemical level for some time already; it is *definitely* the case that stress can make your brain focus more on threatening signals such as tinnitus, even if in normal situations the brain has learned to tune such signals out. Joined: 10/10/2008 Posts: 4305 I have not seen the ocular problems you describe. If that can save even one person from this horrible condition then it’ll be worth it. So I don’t have any personal experience with the results of radiosurgery. We DO see balance problems fairly commonly, and they often get better with radiosurgery but not always. I assume the same is true for the ocular symptoms.


Many patients get quicker relief from balance problems with surgery, but not all. I assume the same is true for ocular symptoms like these. In order to achieve that result, the surgeon cuts the nerve. Not an optimal result. Thanks Dr M for clarifying as I was not 100% sure on this… I have not heard of these types of ocular issues for such a small, untreated AN and couldn’t answer Amy’s question properly, so guided her here to ask you all instead. I was not 100% correct on something, thus..

I owe Amy dinner (I urged the bet). Joined: 8/5/2009 Posts: 10 Dr. Medbery; Thanks so much for your response. Is there any data out there on that? I simply cannot fathom dealing with this indefinitely. I want to choose the treatment that gives me the best shot at resolution…long term. My understanding was that the brain almost always compensates (eventually).

I don’t have any “balance” issues now per se (i.e., disequilibrium, unsteadiness, etc), and my fear is that cutting the nerve may bring those on. I am very active so I think that might be worse than what I currently have. That was a good thing, right? I know you’ll make the best decision you can for you and your situation. Joined: 8/5/2009 Posts: 10 Thank you Dr. M…how kind! I really appreciate the information.

Doesn’t sound too promising though. I don’t quite understand the mechanism of action – why I have these particular symptoms as opposed to other more common ones. I have a small, non-growing tumor so  I’m not sure if treatment will have any impact. Guess I could focus on hearing preservation (currently have only high frequency loss)  and prevention of future growth, but what really bothers me are the vestibular symptoms. Anyway, thanks again. either go to an ENT and ask or just google it and find some exersices.. its easy – just requires a few minutes of your time.

You have to retrain your brain and vestiubular-ocular reflex for you new inputs to the system…It may take a few weeks for it to take effect but my life got 1000 x better once I was told about this stuff.

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